Health-related Quality of Life in Children and Youth – a Challenge for Public Health
|Dozent/in||Priv.-Doz. Dr. Ulrike Ravens-Sieberer|
Do 12.15 UhrWahlveranstaltung
While quality of life research in adults has progressed substantially over the past 15 years, health-related quality of life of children has only recently been addressed. QOL research in children is important because children can be confronted with disease and treatment as patients. It is important to know how children feel and how treatment can be optimised. Also, children can suffer substantial strain from diseases in other family members. Lastly, epidemiological research has so far neglected living conditions that might be detrimental to the health-related quality of life of children; exceptions are a few studies published in the area of public health and clinical psychology.
This workshop reviews the state of the art of quality of life assessment in children/adolescents as it relates to the underlying concepts the instruments available, and application in research and practice.
In der Veranstaltung wird die Gelegenheit zur Ausarbeitung und Präsentation eines Referats gegeben.
- Eiser & Morse (2001). Quality of life measures in chronic diseases of childhood, Health Technology Assessment Report. http://www.ncchta.org
- Rajmil, L., Herdman, M., Fernández de Senmamed, M. J., Detmar, S., Bruil, J., Ravens-Sieberer, U., Bullinger, M., Simeoni, M.-C., Auquier, P. & The Kidscreen Group (2003). Generic health-related quality of life instruments in children and adolescents: a qualitative analysis of content. J Adolesc Health 2003, 33 (6): 320-330.
- Ravens-Sieberer, U., Gosch, A., Rajmil, L., Erhart, M., Bruil, J., Duer, W., Auguier, P., Power, M., Abel, T., Czemy, L., Mazur, J., Czimbalmos, A., Tountas, Y., Haquist, C. & THE European Kidscreen Group (2005). The Kidscreen-52 Quality of life measure for children and adolescents: Development and first results from a European survey. Expert Review of Pharmacoeconomics & Outcome Research, 2005; 5 (3).