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Palliative Quality of Life - Service Utilization by Migrants from Russian Speaking Countries

Institution:

Free University of Berlin
Department of Education and Psychology
Division Qualitative Social and Education Research

Principal Investigator:
Funding:

Federal Ministry of Education and Research

Term:
Oct 01, 2013 — Mar 31, 2017
Contact Person:
Silke Migala, M.Sc.


Migrants from Russian speaking countries (MRS) are one of the biggest groups of migrants in Germany. As a target group they remain under- or unserved in particular in palliative health care. Besides language, other barriers have to be identified preventing this group from using palliative (home) care services and hospices, as utilization of these services may contribute to raising the MRS’ quality of life at the end of life. For health services research, MRS are a hard-to reach population. Research questions of this qualitative study focus on the needs, requirements and experiences of MRS in palliative care in three age groups (young, middle aged and old patients) with an orientation on a culturally sensitive quality of life in the view of MRS and of service providers. Users’ and providers’ perspectives will be compared. About 30 cases of MRS (relatives and/or patients) in a current or recent palliative situation (patients of under 20, 20-65 or over 65 years) varying in gender are interviewed in semi-structured (episodic) interviews. Of particular interest are the conditions of their utilization of palliative services and why they may refrain from utilization. In addition around 30 service providers in the health and palliative care system are interviewed in expert interviews. Data analysis focuses on determinants of utilization behaviours with development of group specific typologies as generalized outcome. The results of this study will be transferred into recommendations and a manual for improving target group specific palliative homecare and hospice services MRS.

Lectures

Migala, S.; Bakadorova, O., & Flick, U. (2015). Palliative Lebensqualität - Facetten der Bedürfniskommunikation russischsprachiger Migrant_innen am Lebensende. Vortrag bei der gemeinsamen Jahrestagung der DGSMP und DGMS, 25. September 2015, Regensburg.

Migala, S.; Bakadorova, O., & Flick, U. (2015). „Und erstmal so 'n bisschen Misstrauen“ - Zugangsbarrieren in der Hospiz- und Palliativversorgung aus Sicht von Expert_innen und russischsprachigen Migrant_innen. Vortrag beim Kongress Armut und Gesundheit, 05.März.2015, Berlin.

Migala, S.; Bakadorova, B., & Flick, U. (2014). PALQUALSUM - Expertensichten zur Inanspruchnahme von russischsprachigen Migrant_innen. Vortrag beim gemeinsamen Kongress für Versorgungsforschung und der Deutschen Gesellschaft für Palliativmedizin, 24. - 27. Juni 2014, Düsseldorf.

Poster

Migala, S.; Bakadorova, O., & Flick, U. (2015). Cultural Awareness - Gaps and Views of Palliative Care Providers. Poster at the 14th World Congress of the European Association for Palliative Care, 08. Mai 2015, Kopenhagen.

Migala, S.; Bakadorova, O., & Flick, U. (2015). „Hospiz“ und „Palliative Care“ - Assoziationen russischsprachiger Migrant_innen in der Versorgung am Lebensende und ihre Bedeutung für eine Inanspruchnahme. Poster beim 14. Deutschen Kongress für Versorgungsforschung, 08. Oktober 2015, Berlin.

 

Publications

Migala, S., & Flick, U. (2018). Individual Needs, Cultural Barriers, Public Discourses. Taking Qualitative Inquiry into the Public Sphere. In N. K. Denzin, & M. D. Giardina (Eds.), Qualitative Inquiry in the Public Sphere (pp. 90–107). London: Routledge.